The Aubrey O’Sullivan Foundation was established by the parents of Aubrey, a 5-year-old little girl who was diagnosed with Reducing Body Myopathy in 2021. After learning there are currently no options for a treatment, and this progression of this disease is fatal, the O’Sullivans made it their mission to find a way forward. The Aubrey O’Sullivan Foundation was founded to drastically accelerate RBM research for this rare disease.

If you, or your child, has been diagnosed with Reducing Body Myopathy, or if you are looking for more information about Reducing Body Myopathy, please send us an email.